Shostack + Friends Blog Archive

 

Data Destroying Anonymity

sperm-framed.jpgNew Scientist reports “Anonymous sperm donor traced on internet:”

LATE last year, a 15-year-old boy rubbed a swab along the inside of his cheek, popped it into a vial and sent it off to an online genealogy DNA-testing service. But unlike most people who contact the service, he was not interested in sketching the far reaches of his family tree. His mother had conceived using donor sperm and he wanted to track down his genetic father.

That the boy succeeded using only the DNA test, genealogical records and some internet searches has huge implications for the hundreds of thousands of people who were conceived using donor sperm. With the explosion of information about genetic inheritance, any man who has donated sperm could potentially be found by his biological offspring. Absent and unknown fathers will also become easier to trace.

The boy paid FamilyTreeDNA.com $289 for the service. His genetic father had never supplied his DNA to the site, but all that was needed was for someone in the same paternal line to be on file.

The implications of a family member being tested are fascinating to me. Here’s a fellow who might have made a strong effort to remain private, but was unmasked anyway. What are the implications for privacy? Will those who are concerned about privacy stop donating sperm, because they’re unable to do so privately (anonymously) any longer? If so, does that mean that being concerned about privacy is genetically inferior, because you’re passing on your genes to fewer children? (That of course presumes that privacy concerns are in part genetically determined, which seems unlikely.)

Could the data in the criminal DNA databases be used for this? I recall a discussion of DNA databases for the identification of criminal suspects where the data was nominally not useful for other things, but this story makes me question that.

Daniel Solove has a few more links at “Finding Dad with a DNA Database.”

2 comments on "Data Destroying Anonymity"

  • Qbi's Weblog says:

    Vater finden

    Stellt euch vor, ihr seid das Produkt einer k?nstlichen Befruchtung und wollt
    wissen, wer euer wirklicher Vater ist. Wie stellt ihr das an?
    Ein 15j?hriger hatte eine recht einfache Idee. Er sammelte eine DNA-Probe von
    sich (Die Fans von CSI wissen, da

  • “Could the data in the criminal DNA databases be used for this? I recall a discussion of DNA databases for the identification of criminal suspects where the data was nominally not useful for other things, but this story makes me question that.”
    Here in the UK your DNA tissue samples can be retained indefinately, not just the small amount needed from say a mouth swab in order to be processed into a digital “DNA fingerprint”. These are retained no matter whether any charges are laid against you, and even if you are found not guilty in court.
    This leaves the original tissue samples open to future, more detailed DNA re-analysis or analysis for different purposes or the use of different genetic identification techniques e.g. RNA Analysis, Chromosome Analysis, or when supercomputers get a lot cheaper, Protein Folding Analysis.

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